With Tourette Across Poland



With Tourete AcrossPoland

 

With Tourette Across Poland– an initiative against exclusion of vulnerable groups from the society, organised within Citizens for Democracyprogramme, financed by NGO grants.

 

The main aim of the project is to prevent exclusion of people with TS and their relatives, who are discriminated and experience difficulties as a result of the disorder. The project is based on the principle that the community work (such as self-help and counselling), raising awareness in the society, professional training sessions for volunteers and experts (including teachers and doctors) will lower the risk of exclusion.

 

The activities will be carried out acrossPoland. The participants include people with TS, their families and those who come across TS at the workplace or in the community. The project will be implemented across the whole country, in both urban and rural areas in the Partnership with many Polish organisations and one fromNorway.

 

Trained volunteers will work locally, giving talks, organising self-helpand team building workshops, aiming to improve a quality of life for people with TS and enable them to get engaged within the society.

 

Information on the project

Information on AcrossPolandwith Tourette

 

Across Polandwith Tourette – an initiative against exclusion of vulnerable groups from the society, organised within Citizens for Democracy programme, financed by NGO grants.

 

Range:Poland

 

Duration: February 2015 – April 2016

 

 

The main aim of the project is to prevent exclusion of people with TS and their relatives, who are discriminated and experience difficulties as a result of the disorder. The project is based on the principle that the community work (such as self-help and counselling), raising awareness in the society, professional training sessions for volunteers and experts (including teachers and doctors) will lower the risk of exclusion.

 

The activities will be carried out acrossPoland. The participants include people with TS, their families and those who come across TS at the workplace or in the community. The project will be implemented across the whole country, in both urban and rural areas in Partnership with many Polish organisations and one fromNorway.

 

Trained volunteers will work locally, giving talks, organising self-help and team building workshops aiming to improve a quality of life for people with TS and enable them to get engaged within the society.

 

 

 

Partners:

Norsk Tourette Forening

Fundacja Rozwoju Wolontariatu

Federacja Organizacji Pozarządowych Centrum Szpitalna

 

Budget: 346 500.00 PLN (overall financial and non-financial costs)

Donations: 311 850.00 PLN

 

Actions

1. Administration

 

2. Information and promotion:

Promotional materials (posters, gadgets, roll-up)

 

3. Tourette's Academy

Training sessions for the following groups:

- volunteers – local leaders (including persons with TS, 16 people, one person per province),

- volunteers – assistants (including persons with TS, 32 people from acrossPoland),

- experts – people who may come across TS at work (for instance: teachers, psychologists, doctors, therapists, 48 people from acrossPoland).

 

3.2. Training sessions for Local Leaders

Objectives: psychological empowerment of the leaders and development of skills necessary to work within communities in order to be able to offer a support to people with TS.

Scope: dealing with TS, self-motivation and motivation of the team, creating community centres and support groups, promoting activities, cooperation with media, fund-raising (including crowd funding), managing projects.

 

3.3. Training for Assistants

Objectives: providing a basic knowledge about TS, how to deal with the TS in day to day circumstances, how to support people with TS through community work and prevent a social exclusion.

Scope: providing a basic knowledge about TS and principles of working in community, which would enable them to work locally and assist the leaders.

 

3.4 Trainings for Experts

Objectives: dealing with TS at work.

Scope: educating people at a workplace about TS, leading to a better understanding of the symptoms and gaining skills necessary to prevent exclusion of people with TS.

 

4. Astudy visit to our Partner inNorway

Participants: around 15 people (the most active leaders and assistants, PSTT representatives)

Objectives: familiarising ourselves with the actions taken by the Partner (forms of work activities, ways of dealing with TS, exchanging experiences).

 

 

5. Community work

5.1. Assessment of abilities

A phase which allows people with TS to take part in decision making process in terms of necessary forms and methods of help.

5.2. Tourette in a local community

Nationwide campaign involving community work, with a leadership o

Our Mission

The Association offers support to persons with Tourette Syndrome and their families. We create opportunities for them to meet up and interact. Our objective is also to share the awareness about the nature of Tourette Syndrome and indicate the opportunities for  therapy. 

 

In order to meet these objectives, the Association has embarked on educational campaign based on spreading the information and publications about TS. The Association collaborates with the specialists and relevant authorities in the fields of education, health and science research.

Events Schedule

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Tourette Syndrom Association of Poland enjoys a preferential tax treatment as a Public Benefit Organisation

 
 


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Tourette de Pologne - Archives

Tourette Syndrome

Tourette Syndrome is an inherited, neurological condition, its key features are tics, involuntary and uncontrollable sounds and movements.  The tics are usually of a mild nature, however in the more extreme condition they can manifest themselves in involuntary swearing or making obscene or otherwise unacceptable movements or gestures.

 

The disorder is named after Gilles de la Tourette, the  French neurologist and neuropsychiatrist, , who in 1885, whilst working  at the Pitié-Salpêtrière Hospital in Paris, described 9 cases of this condition. 

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Tourette Syndrom Association

Tourette Syndrom Association of Poland
Centrum Organizacji Pozarządowych SZPITALNA
ul. Szpitalna 5 m. 5
00-031 Warszawa

Tel: (48) 22 828 91 28 Extension 143

tourette@tourette.pl

Copyright © 2013 -2019 Polish Tourette Syndrome Association | Created by WebProjekt
The website design of the English version was realized within the project “With Tourette Across Poland – programme against social exclusion of people diagnosed with Tourette Syndrom”
which is a part of the programme “ Citizens for Democracy” funded by the EEA Grants and Norway Grants.

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