EUROPEAN TOURETTE SYNDROME RESEARCH SURVEY

2 November 2017Maciej Soborczyk0 comments

Tourettes Action is conducting the first ever European Tourette Syndrome Research Survey! For the first time ever patients and their families with Tourette Syndrome across lots of EU countries (11 different languages) are invited to help us tell researchers what they would like Tourette Syndrome research to focus on. This questionnaire is for patients and their families who have TS. This questionnaire is anonymous and the results will be reported at the ESSTS (European Society for the study of Tourette Syndrome conference in 2018) and elsewhere. The link to the survey https://www.surveymonkey.com/r/9Z6DDC2

Our Mission

The Association offers support to persons with Tourette Syndrome and their families. We create opportunities for them to meet up and interact. Our objective is also to share the awareness about the nature of Tourette Syndrome and indicate the opportunities for therapy.

In order to meet these objectives, the Association has embarked on educational campaign based on spreading the information and publications about TS. The Association collaborates with the specialists and relevant authorities in the fields of education, health and science research.

Events Schedule

April 2020

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Upcoming events

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Tourette de Pologne - Archives

Tourette Syndrome

Tourette Syndrome is an inherited, neurological condition, its key features are tics, involuntary and uncontrollable sounds and movements. The tics are usually of a mild nature, however in the more extreme condition they can manifest themselves in involuntary swearing or making obscene or otherwise unacceptable movements or gestures.

The disorder is named after Gilles de la Tourette, the French neurologist and neuropsychiatrist, , who in 1885, whilst working at the Pitié-Salpêtrière Hospital in Paris, described 9 cases of this condition.

Service

Tourette Syndrom Association

Tourette Syndrom Association of Poland
Centrum Organizacji Pozarządowych SZPITALNA
ul. Szpitalna 5 m. 5
00-031 Warszawa

Tel: (48) 22 828 91 28 Extension 143

tourette@tourette.pl

The website design of the English version was realized within the project “With Tourette Across Poland – programme against social exclusion of people diagnosed with Tourette Syndrom”
which is a part of the programme “ Citizens for Democracy” funded by the EEA Grants and Norway Grants.

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