History & Milestones

Searching for treatment for my son, who has TS, I exchanged correspondence with a doctor from Yale University. In 1996 he recommended Jacek Bomba to me, professor from Psychiatry Department in Krakow, who then sent me to Elżbieta Bobiatyńska (MA), sociologist at the Information Centre TOPOS in Warsaw.  At that time I thought my son was the only person in Warsaw with TS, so the idea of founding Association dedicated to TS seemed to be a bit infeasible.  

 

Nevertheless, we sent information to around 30 newspapers (daily, weekly and monthly ones).  Some of them responded and placed the add.  A few people replied.  Ewa Boguszewska found out about our idea from the American Association in New York. 

 

Once we had a Committee (15 people), we called the first meeting during which the Board was elected, as follows: Kalina Michalkiewicz (Chair), Ewa Boguszewska (Vice Chair), Iwona Banaszczyk (Treasurer), Piotr Denkiewicz (Vice Treasurer), Krzysztof Gierulski (Member), Bożena Sobieszczańska (Member), Stanisław Gulczyński (Member). On 24 September 1997 Polish Association of Tourette Syndrome was officially registered.  

 

In its first days our office was located on  ul. Długa 38/40. In March 2002 we moved to  ul. Szpitalna 5/5 (NGO Centre SZPITALNA). The New Board and its Members were registered on 20 January 2004.

Milestones

24.09.1997   Tourette Syndrom Association of Poland founded in Warsaw, Poland

2004             Launching a website layout designed by WebProjekt, Agencja Usługowo-Reklamowa

2013 - 2014   Programme Tourette de Pologne funded by Swiss-Polish Cooperation Programme

2015 - 2016   Programme With Tourette Across Poland funded by Norway and EEA Grants

 



Our Mission

The Association offers support to persons with Tourette Syndrome and their families. We create opportunities for them to meet up and interact. Our objective is also to share the awareness about the nature of Tourette Syndrome and indicate the opportunities for  therapy. 

 

In order to meet these objectives, the Association has embarked on educational campaign based on spreading the information and publications about TS. The Association collaborates with the specialists and relevant authorities in the fields of education, health and science research.

Events Schedule

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Tourette Syndrom Association of Poland enjoys a preferential tax treatment as a Public Benefit Organisation

 
 


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Tourette de Pologne - Archives

Tourette Syndrome

Tourette Syndrome is an inherited, neurological condition, its key features are tics, involuntary and uncontrollable sounds and movements.  The tics are usually of a mild nature, however in the more extreme condition they can manifest themselves in involuntary swearing or making obscene or otherwise unacceptable movements or gestures.

 

The disorder is named after Gilles de la Tourette, the  French neurologist and neuropsychiatrist, , who in 1885, whilst working  at the Pitié-Salpêtrière Hospital in Paris, described 9 cases of this condition. 

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Tourette Syndrom Association

Tourette Syndrom Association of Poland
Centrum Organizacji Pozarządowych SZPITALNA
ul. Szpitalna 5 m. 5
00-031 Warszawa

Tel: (48) 22 828 91 28 Extension 143

tourette@tourette.pl

Copyright © 2013 -2019 Polish Tourette Syndrome Association | Created by WebProjekt
The website design of the English version was realized within the project “With Tourette Across Poland – programme against social exclusion of people diagnosed with Tourette Syndrom”
which is a part of the programme “ Citizens for Democracy” funded by the EEA Grants and Norway Grants.

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