Searching for treatment for my son, who has TS, I exchanged correspondence with a doctor from Yale University. In 1996 he recommended Jacek Bomba to me, professor from Psychiatry Department in Krakow, who then sent me to Elżbieta Bobiatyńska (MA), sociologist at the Information Centre TOPOS in Warsaw. At that time I thought my son was the only person in Warsaw with TS, so the idea of founding Association dedicated to TS seemed to be a bit infeasible.
Nevertheless, we sent information to around 30 newspapers (daily, weekly and monthly ones). Some of them responded and placed the add. A few people replied. Ewa Boguszewska found out about our idea from the American Association in New York.
Once we had a Committee (15 people), we called the first meeting during which the Board was elected, as follows: Kalina Michalkiewicz (Chair), Ewa Boguszewska (Vice Chair), Iwona Banaszczyk (Treasurer), Piotr Denkiewicz (Vice Treasurer), Krzysztof Gierulski (Member), Bożena Sobieszczańska (Member), Stanisław Gulczyński (Member). On 24 September 1997 Polish Association of Tourette Syndrome was officially registered.
In its first days our office was located on ul. Długa 38/40. In March 2002 we moved to ul. Szpitalna 5/5 (NGO Centre SZPITALNA). The New Board and its Members were registered on 20 January 2004.
24.09.1997 Tourette Syndrom Association of Poland founded in Warsaw, Poland
2004 Launching a website layout designed by WebProjekt, Agencja Usługowo-Reklamowa
2013 - 2014 Programme Tourette de Pologne funded by Swiss-Polish Cooperation Programme
2015 - 2016 Programme With Tourette Across Poland funded by Norway and EEA Grants
The Association offers support to persons with Tourette Syndrome and their families. We create opportunities for them to meet up and interact. Our objective is also to share the awareness about the nature of Tourette Syndrome and indicate the opportunities for therapy.
In order to meet these objectives, the Association has embarked on educational campaign based on spreading the information and publications about TS. The Association collaborates with the specialists and relevant authorities in the fields of education, health and science research.
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Tourette Syndrom Association of Poland enjoys a preferential tax treatment as a Public Benefit Organisation